Jason is doing really well and is sleeping right now. He has a fancy air bed that helps so much with alleviating his lower back pain. He said that it is so much better than the other bed. He just ate is first meal after about 36 hours of no food or drinking.
Dr. Baird came in this morning briefly and confirmed that he did remove 99% or close to all of the tumor. The tumor that was left would have affected his motor skills if removed so he did not feel safe in doing so. I am so impressed with this surgery. It is night and day compared to his surgery in Portland. He is already out of the ICU here! In Portland he was in ICU for days....what a difference!
There is still the issue of the tumors spreading which it sounds like they have already done. I knew that was a possibility and had asked the Physicians Assistant at Dr. Antezana's (the first surgeon) office about it. I was told this was a primary tumor that would not spread! Well....they were wrong. That office was also the ones that told the ER we went to that there was nothing else they could do for us....sickening really.
So what happens next??? We will need to decide on treatment for Jason. This is a tough thing to decide because we really believe in the alternative treatments however this tumor is super aggressive and needs something super aggressive to fight it. We welcome your thoughts and suggestions on treatment options.
The hospital here is amazing! They have everything here. The food is actually real food too not that crap they were serving us at Providence Portland that was powered food and junk. They actually try to serve organic foods whenever possible too. I have nothing bad to say about this place!
On 4/28 Jason was diagnosed with the very aggressive stage 4 Glioblastoma Multiforme brain cancer. He has had 3 surgeries. He wears a helmet until his skull can be replaced. We were told on 5/29 that there was nothing else that could be done for him and it was time to bring in hospice. The next day is when he had his 2nd brain surgery which was performed at CTCA in Tulsa. 99% of his tumor was removed!He has started radiaiton and alternative treatments and is hopeful he will be a cancer survivor!
Donte Now
Thursday, May 31, 2012
Post Surgery: 5/30/12
Jason asked me to post this for him.....I appreciate all of your support and we found the right place. Love Jason (Yes!!!! Jason asked me to post this *huge smile on my face right now)
His surgery went well last night. He went into surgery around 7:30pm (CST) and they actually started the surgery around 8:15pm. The goal of this surgery was to remove as much of his tumor using Cortical Mapping. The nurse contacted me during the surgery 2 times to let me know how Jason was doing, she said everything was going good. I was so nervous. The whole time I was waiting I just kept telling myself good thoughts and praying.
At 11pm Dr. Baird came out to the waiting room. He said that Jason was doing good and that he was able to remove most of the tumor. I heard him say 99% but I think he said that was of visible tumor, I am going to clarify today when we see him. He did confirm what we already knew which was the tumor was deep, so unfortunately he was not able to remove all of it safely. He mentioned possible complications such as him not moving his left side, fluid on brain, and also mentioned that they fond more tumors. It sounds like from what I have read when someone has brain surgery that is extremely likely because the blood travels all through the brain and can carry those tumor cells to other parts of the brain. He mentioned they were small and on the back of his head. He is not sure how long Jason will need to be here it will just be determined of course on how well Jason is doing.
I thanked him for everything he had done, told him how amazing he was for giving Jason a chance, and asked if I could hug him. He embraced me with open arms. He is a wonderful surgeon who really does care about his patients, it really shows. He also talked to me as if I was his friend, not a stranger. He is very kind and honest. He returned back to the operating room and let me know I could go to the 2nd floor to wait for Jason. While I was sitting there I was surprised to see him return. He came back to tell me that Jason was moving his left side, and although it was weak, he was in fact moving!!!!!! The good news just kept coming!!!
Once we got back to the Special Care Unit Jason was awake and talking. He remembered who I was and knew where he was. He was a little confused on what happened to his head but recalled flying on the plane to get here. I told me he loved me - it was music to my ears! I told him how great he was doing! I can't begin to explain the difference in how he acted after the first surgeries to this one. After the ones in Portland he was not as aware of things or talking as much, he was watching TV this morning and saying full sentences.....amazing and I thank God for carrying him through this. In addition his face looks so much better, if he didnt have the wrap on his head you would probably not know that he had just had surgery. His color is great too! No bruising or swelling in his face at this time. He looks incredibly great for what he has just endured.
Right now Jason is getting a CT Scan. Hoping for more good news.
His surgery went well last night. He went into surgery around 7:30pm (CST) and they actually started the surgery around 8:15pm. The goal of this surgery was to remove as much of his tumor using Cortical Mapping. The nurse contacted me during the surgery 2 times to let me know how Jason was doing, she said everything was going good. I was so nervous. The whole time I was waiting I just kept telling myself good thoughts and praying.
At 11pm Dr. Baird came out to the waiting room. He said that Jason was doing good and that he was able to remove most of the tumor. I heard him say 99% but I think he said that was of visible tumor, I am going to clarify today when we see him. He did confirm what we already knew which was the tumor was deep, so unfortunately he was not able to remove all of it safely. He mentioned possible complications such as him not moving his left side, fluid on brain, and also mentioned that they fond more tumors. It sounds like from what I have read when someone has brain surgery that is extremely likely because the blood travels all through the brain and can carry those tumor cells to other parts of the brain. He mentioned they were small and on the back of his head. He is not sure how long Jason will need to be here it will just be determined of course on how well Jason is doing.
I thanked him for everything he had done, told him how amazing he was for giving Jason a chance, and asked if I could hug him. He embraced me with open arms. He is a wonderful surgeon who really does care about his patients, it really shows. He also talked to me as if I was his friend, not a stranger. He is very kind and honest. He returned back to the operating room and let me know I could go to the 2nd floor to wait for Jason. While I was sitting there I was surprised to see him return. He came back to tell me that Jason was moving his left side, and although it was weak, he was in fact moving!!!!!! The good news just kept coming!!!
Once we got back to the Special Care Unit Jason was awake and talking. He remembered who I was and knew where he was. He was a little confused on what happened to his head but recalled flying on the plane to get here. I told me he loved me - it was music to my ears! I told him how great he was doing! I can't begin to explain the difference in how he acted after the first surgeries to this one. After the ones in Portland he was not as aware of things or talking as much, he was watching TV this morning and saying full sentences.....amazing and I thank God for carrying him through this. In addition his face looks so much better, if he didnt have the wrap on his head you would probably not know that he had just had surgery. His color is great too! No bruising or swelling in his face at this time. He looks incredibly great for what he has just endured.
Right now Jason is getting a CT Scan. Hoping for more good news.
Wednesday, May 30, 2012
5/30/12
I am sending an update because I know news travels fast and I am sure you are all worried....on Monday Jason fell into the door and wall in our bedroom after getting out of bed. He hit is head and fell. I was standing pretty close to him and caught him part way down and laid him on the ground. He did not have his helmet on. He immediately told me he was fine, but I made him lay there for a minute. I was really shaken up since I did not know what happened exactly. I called his neurosurgeons office, a physicians assistant called me back. I told him what had happened and he said that I should "watch him". Over the next 24 hours Jason became very weak, could barely walk on his own and even slid of the couch from a sitting position . I noticed that his head seemed to be swelling. As we prepared for our flight to Oklahoma my mom was at our house and noticed that Jason was losing color as well. She called CTCA and spoke with Donna who told us we needed to take him in to get checked out prior to flying. We took him to the ER in Oregon City. They did a CT scan and found that he is bleeding and that his tumor has doubled in size. We were then told there was nothing else that they could do for us except call hospice. I was so angry - this is someones life we are talking about and you are telling us there is nothing you could do! Well little do they know.....we are fighters and we do not give up. We believe that God has a plan for Jason and whatever that plan is it does not involve us quitting. Jason has such an amazing strength about him that even though he was told he is going to dye HE BELIEVES that he will live! I am so blessed to know such an amazing, strong and loving person.
Bonnie, Jerry, Jesse and I were all at the ER with Jason. We all decided that we just wanted to go home and not involve hospice, to not give up. I immediately call Chelsea's Sanctuary where we had went the day before and asked Liz if they could help with getting us a light. Scott was out our house within a couple of hours setting it up and praying with us! They are some of the wonderful people we have ever met. We just met them the day before and here is was out our house, helping us and praying for Jason! Not to mention, it is a 45 minute drive from Chelsea's Sanctuary to our house!
During this time I was on the phone with Donna from CTCA. She asked if I could have Jason's scans faxed over so that she could have their surgeon review them. Once they had the scans the surgeon, Clinton Baird, reviewed the scans and called me to discuss plans for Jason. He said that Jason's head had fluid and confirmed the bleeding. He also said that he needs to have an MRI, but believes that he can remove 80% of his tumor and wants to get rid of the fluid to help with swelling. He gave us so much hope that he could help Jason! I even called him back so that my mom could ask him more questions.
Jason was very weak and had thrown up 3 times. He was extremely cold and running a fever of 100.8.
We talked to Jason about what he wanted. Of course it is a VERY hard decision. There is a risk in staying and risk in leaving. He decided that he wanted to travel to Tulsa. They arranged for a medical flight and picked us up at our house in an ambulance. Because we were flying on a medical flight they took us straight to the airplane. It was a small plan - only Jason and I, two medical staff, and two pilots. We got to Tulsa at about 1:45 am.
We are now in the Special Care Unit at CTCA. Everyone here has been wonderful. We are waiting for the surgeon to come in to talk to us before Jason's surgery. PLEASE PRAY FOR JASON!!! We just said a prayer and we remain hopeful that he WILL come out of this stronger than ever.
I will try to keep updated as I can. We love you all!
Bonnie, Jerry, Jesse and I were all at the ER with Jason. We all decided that we just wanted to go home and not involve hospice, to not give up. I immediately call Chelsea's Sanctuary where we had went the day before and asked Liz if they could help with getting us a light. Scott was out our house within a couple of hours setting it up and praying with us! They are some of the wonderful people we have ever met. We just met them the day before and here is was out our house, helping us and praying for Jason! Not to mention, it is a 45 minute drive from Chelsea's Sanctuary to our house!
During this time I was on the phone with Donna from CTCA. She asked if I could have Jason's scans faxed over so that she could have their surgeon review them. Once they had the scans the surgeon, Clinton Baird, reviewed the scans and called me to discuss plans for Jason. He said that Jason's head had fluid and confirmed the bleeding. He also said that he needs to have an MRI, but believes that he can remove 80% of his tumor and wants to get rid of the fluid to help with swelling. He gave us so much hope that he could help Jason! I even called him back so that my mom could ask him more questions.
Jason was very weak and had thrown up 3 times. He was extremely cold and running a fever of 100.8.
We talked to Jason about what he wanted. Of course it is a VERY hard decision. There is a risk in staying and risk in leaving. He decided that he wanted to travel to Tulsa. They arranged for a medical flight and picked us up at our house in an ambulance. Because we were flying on a medical flight they took us straight to the airplane. It was a small plan - only Jason and I, two medical staff, and two pilots. We got to Tulsa at about 1:45 am.
We are now in the Special Care Unit at CTCA. Everyone here has been wonderful. We are waiting for the surgeon to come in to talk to us before Jason's surgery. PLEASE PRAY FOR JASON!!! We just said a prayer and we remain hopeful that he WILL come out of this stronger than ever.
I will try to keep updated as I can. We love you all!
Monday, May 28, 2012
Carpenter's Grace
Today we are going to Carpenter's Grace to use the Rife Light which has been proven to be effective many diseases including brain cancer. The owners lost their daughter and now help other people in her honor.
Here is their story:
Our second daughter Chelsea Anne Carpenter was born the fifth of April 1992 and welcomed by her sister Lindsey Sierra Carpenter. When she was 3-1/2 years old, one night we discovered Chelsea was very pale and seemed very sickly. We were fearful of the worst and took her to the emergency room. It was there that they diagnosed her with acute lymphocytic leukemia. We were crushed.
From there, blood transfusions (she had no red blood cells), chemotherapy, vomiting, hair loss, weekly shots and blood draws with needles that seemed as big as her arms and legs, they implanted a buddy port and after two years of long drives back and forth and who knows how much money had been spent, they told us she was cured. It seemed too good to be true--and it was.
Six months later she resumed vomiting and severe headaches and we were then informed her condition had become refractory central nervous system leukemia. As bad news goes, this was the worst. They resumed her chemotherapy treatments and on the second of January 1999, she was given a near fatal dose of chemo that caused her to go into cardiac arrest. She was brought back to life only to have the doctors discover they had damaged her little heart beyond repair. She was given three months to live—maybe.
Along the way we discovered a friend/neighbor who had recently purchased a light and sound generator also known as the beam ray. He welcomed our limp, lifeless daughter into his home and within a few weeks our sweet Chelsea came alive and we were all dancing circles with her in the living room. After a month, our little Chelsea was able to state resolutely, "I don't have leukemia anymore." And she was right. We went back to the hospital and had her blood drawn and found she was making perfectly normal blood cells. The doctors thought we were crazy! We thought we could see the light.
Within a month we had enough money to get our own generator however, because of the heart damage she sustained from the chemo overdose, her little heart began failing and on the 24th of August 1999, and our little Chelsea died.
We felt such pain, leaving the hospital without our Chelsea! So from healing our wounds, we were led to help others who are suffering in and from the human condition.
http:// www.chelseassanctuary.com/ default.html
Here is their story:
Our second daughter Chelsea Anne Carpenter was born the fifth of April 1992 and welcomed by her sister Lindsey Sierra Carpenter. When she was 3-1/2 years old, one night we discovered Chelsea was very pale and seemed very sickly. We were fearful of the worst and took her to the emergency room. It was there that they diagnosed her with acute lymphocytic leukemia. We were crushed.
From there, blood transfusions (she had no red blood cells), chemotherapy, vomiting, hair loss, weekly shots and blood draws with needles that seemed as big as her arms and legs, they implanted a buddy port and after two years of long drives back and forth and who knows how much money had been spent, they told us she was cured. It seemed too good to be true--and it was.
Six months later she resumed vomiting and severe headaches and we were then informed her condition had become refractory central nervous system leukemia. As bad news goes, this was the worst. They resumed her chemotherapy treatments and on the second of January 1999, she was given a near fatal dose of chemo that caused her to go into cardiac arrest. She was brought back to life only to have the doctors discover they had damaged her little heart beyond repair. She was given three months to live—maybe.
Along the way we discovered a friend/neighbor who had recently purchased a light and sound generator also known as the beam ray. He welcomed our limp, lifeless daughter into his home and within a few weeks our sweet Chelsea came alive and we were all dancing circles with her in the living room. After a month, our little Chelsea was able to state resolutely, "I don't have leukemia anymore." And she was right. We went back to the hospital and had her blood drawn and found she was making perfectly normal blood cells. The doctors thought we were crazy! We thought we could see the light.
Within a month we had enough money to get our own generator however, because of the heart damage she sustained from the chemo overdose, her little heart began failing and on the 24th of August 1999, and our little Chelsea died.
We felt such pain, leaving the hospital without our Chelsea! So from healing our wounds, we were led to help others who are suffering in and from the human condition.
http://
www.chelseassanctuary.com
the Carpenter's Grace, a free, family shared alternative healing center, dedicated to finding new ways to live with disease using Rife technology and other light and sound modalities.
Saturday, May 26, 2012
OHSU Knight Cancer Institute
The doctors at OSHU Knight Cancer Institute were very nice and answered all of our questions. They recommended radiation and chemo as the other oncologist had at Providence Portland. I asked if they thought that OHSU was the best place for Jason to get care and they said no. We appreciated their honesty. They are able to re-look at his pathology test to see if they agree or disagree with the diagnosis. They also are going to check the tumor to see if it is methalated or not methalated. From what I understand, if it is methalated the tumor well respond better to treatment. This can take up to 2 weeks to get the results back. We will not be going to OHSU for treatment but are thankful for the work they are doing to help Jason. They were extremely knowledgable and offered a great deal of information to us. We were there for over 2 hours and they did not rush us at all. I am very happy with them, I only wish they could offer the best treatment for his condition.
We are going to CTCA in Tulsa Oklahoma on Tuesday, hoping for the best!
We are going to CTCA in Tulsa Oklahoma on Tuesday, hoping for the best!
Providence Hospital Photos
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Jason watching Makalin open one of her presents since he didnt get to see her on her birthday |
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Jason and his mom |
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Jason and Makaylin |
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First time outside at hospital |
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Jason watching Makaylin open one of her presents since he didnt get to see her on her birthday |
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Playing with the buttons on dad's bed |
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Lyric showing how big Jason's helmet is |
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Jason and Lyric |
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Jason and Ryan Ichimura |
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Lyric wearing Jasons helmet |
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Giving daddy some pistachios |
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Jason and his mom |
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kissing his baby |
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Dillon wearing Jason's helmet |
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Jason and Lyric |
Friday, May 25, 2012
Preparing for his appointments at Knight Cancer Institute and Cancer Centers of America
Preparing for his appointments at Knight Cancer Institute and Cancer Centers of America
1. What treatments do you recommend for a GBM?
2. Why do you recommend that type of treatment?
3. How often would that treatment take place?
4. Will treatment be limited to the brain? (treatment should be)
5. Do you combine alternative treatment with conventional?
a. B17 injections?
b. High dose Vitamin C IV’s
c. GB 4000 M.O.P.A?
d. Other immuno-stimulating nutrients?
6. What alternative treatments do you recommend?
7. What is the success rate of the treatment you are recommending?
8. Does the treatment you are recommending target the center of the tumor (that is where the cells are proliferating – in other words spreading quickly)
9. Because the brain is immunologically isolated how do the treatments you are recommending effectively treat the tumor? (the blood: brain barrier only allows suger, oxygen and fat to get by)
10. Does the treatment affect each and every tumor cell?
11. Does it kill all cell types within the tumor?
12. Does the treatment spare the remaining normal brain?
13. Does the treatment you are recommending treat the whole brain? (it should)
14. Does the treatment increase mutations of the abnormal cells?
15. Can the radiation affect other parts of his body?
16. Can radiation cause brain damage or cause other types of cancer?
17. Does the treatment you are recommending compromise the immune system? And in what way?
18. Are there other risks or side effects associated with the treatment?
19. What are complications we should watch for?
20. Are there any medications or supplements that he should avoid or discontinue?
21. How do you measure Jason’s progress?
22. How often is his progress measured?
23. How do you determine the tumor’s growth dynamics and do you adjust treatments to how the tumor is responding? (Growth fraction, cell cycle time, cell loss, doubling time)
24. What is the probability of the tumor cells traveling beyond the brain?
25. We read that tumors involve the whole brain and that even though they seem to grow locally, tumor cells travel around the brain and are always found beyond the tumor margins, even on the opposite side of the brain. Do you or will you be checking to see if this is the case with Jason?
26. We read that brain tumors are not cancers, how was it determined that his tumor is cancerous?
27. Jason often states that he is very cold, what is causing that?
28. We are already seeing improvements in his cognitive and motor functions as well personality traits, do you commonly see these types of improvements?
29. Why is Jason experiencing pain at sacrum, gluteal orgin? Could the cancer have spread there? We would like to request an MRI.
AT HOME PROTOCOL
Alkalizing Protocol:
1. 80% raw foods and 20% cooked foods, nutrient dense diet
2. Limiting and avoiding acid forming foods
3. Drinking Kangen Water
4. Calcium and Potassium
5. Green Drinks
High Good Fat Intake – For Cognitive Improvement and Brain Health
1. Raw nuts and seeds
2. Coconut Oil, Olive Oil, Etc
3. EFA Supplements
4. Phosphatidyl Serine
Immune Stimulating Supplements
1. Beta Glucan 1,3
2. IP6 and Inositol
3. Pancreatin
4. CoQ10
5. N-Acetyl Cysteine
6. Green Tea
Digestive Support
1. Advanced Enzymes
2. Pancreatin – (also anti-cancer)
Anti-Inflammatory/ Anti-Swelling
1. Quercetin
2. Bromelain
3. MSM
4. EFA’s
5. Tumeric
Other
1. Essential Oils – Frankencense, Geranium, Lavendar
2. Dry Brushing
3. Trace Minerals
1. What treatments do you recommend for a GBM?
2. Why do you recommend that type of treatment?
3. How often would that treatment take place?
4. Will treatment be limited to the brain? (treatment should be)
5. Do you combine alternative treatment with conventional?
a. B17 injections?
b. High dose Vitamin C IV’s
c. GB 4000 M.O.P.A?
d. Other immuno-stimulating nutrients?
6. What alternative treatments do you recommend?
7. What is the success rate of the treatment you are recommending?
8. Does the treatment you are recommending target the center of the tumor (that is where the cells are proliferating – in other words spreading quickly)
9. Because the brain is immunologically isolated how do the treatments you are recommending effectively treat the tumor? (the blood: brain barrier only allows suger, oxygen and fat to get by)
10. Does the treatment affect each and every tumor cell?
11. Does it kill all cell types within the tumor?
12. Does the treatment spare the remaining normal brain?
13. Does the treatment you are recommending treat the whole brain? (it should)
14. Does the treatment increase mutations of the abnormal cells?
15. Can the radiation affect other parts of his body?
16. Can radiation cause brain damage or cause other types of cancer?
17. Does the treatment you are recommending compromise the immune system? And in what way?
18. Are there other risks or side effects associated with the treatment?
19. What are complications we should watch for?
20. Are there any medications or supplements that he should avoid or discontinue?
21. How do you measure Jason’s progress?
22. How often is his progress measured?
23. How do you determine the tumor’s growth dynamics and do you adjust treatments to how the tumor is responding? (Growth fraction, cell cycle time, cell loss, doubling time)
24. What is the probability of the tumor cells traveling beyond the brain?
25. We read that tumors involve the whole brain and that even though they seem to grow locally, tumor cells travel around the brain and are always found beyond the tumor margins, even on the opposite side of the brain. Do you or will you be checking to see if this is the case with Jason?
26. We read that brain tumors are not cancers, how was it determined that his tumor is cancerous?
27. Jason often states that he is very cold, what is causing that?
28. We are already seeing improvements in his cognitive and motor functions as well personality traits, do you commonly see these types of improvements?
29. Why is Jason experiencing pain at sacrum, gluteal orgin? Could the cancer have spread there? We would like to request an MRI.
AT HOME PROTOCOL
Alkalizing Protocol:
1. 80% raw foods and 20% cooked foods, nutrient dense diet
2. Limiting and avoiding acid forming foods
3. Drinking Kangen Water
4. Calcium and Potassium
5. Green Drinks
High Good Fat Intake – For Cognitive Improvement and Brain Health
1. Raw nuts and seeds
2. Coconut Oil, Olive Oil, Etc
3. EFA Supplements
4. Phosphatidyl Serine
Immune Stimulating Supplements
1. Beta Glucan 1,3
2. IP6 and Inositol
3. Pancreatin
4. CoQ10
5. N-Acetyl Cysteine
6. Green Tea
Digestive Support
1. Advanced Enzymes
2. Pancreatin – (also anti-cancer)
Anti-Inflammatory/
1. Quercetin
2. Bromelain
3. MSM
4. EFA’s
5. Tumeric
Other
1. Essential Oils – Frankencense, Geranium, Lavendar
2. Dry Brushing
3. Trace Minerals
Wednesday, May 23, 2012
2nd opinion
Going here for a 2nd opinion hopefully on Thursday
http://www.ohsu.edu/xd/health/ services/cancer/ getting-treatment/services/ radiation-therapy/ understanding-radiation-therapy / external-beam-radiation-therapy /novalis-tx.cfm
www.ohsu.edu
Learn about Novalis Tx radiation therapy for tumors of the brain, spine, and other cancers. Make an appointment with the radiosurgery team at Knight Cancer Institute in Portland, Oregon.
We are also going to Tulsa Oklahoma to get another opinion, hopefully next week
We are also going to Tulsa Oklahoma to get another opinion, hopefully next week
Monday, May 21, 2012
Hospital Bills
Hospital Bills as of right now $123,000 - I think my heart skipped a couple beats - But I am so grateful that they helped Jason to me that is priceless =)
Thanks!!!
Thank you to all our amazing friends that came over yesterday and did yard work! Jason and I are so grateful for all of you!!!!!!!!!!!!! You did an amazing job, it looks beautiful! We hope you know how much we love you all ♥ We could not ask for better friends. Thank you for bringing over so wonderful food and hanging out with us. It is so needed in such a stressful time in our lives to just forget about everything and have some good laughs!
Kangen Water
If you have not already please send your name and address (or your email address) to fightingforjason@yahoo.com - thank you!!!!
I went and picked up the Kangen Water the other day!!! It has a PH of 8.5 and I also got 11.5. Jason is supposed to drink 90 oz everyday and 2 small shot glass size drinks of the 11.5. The purpose of this is to bring his PH up as cancer cannot survive in an alkaline envirnoment. Plus the water is just better for all of us! http://kangendemo.com/
The water is in addition to diet, supplements and excercise. We usually go for a walk around the neighborhood every night.
Jason and I still remain hopeful that he will survive cancer!!! We are still researching conventional treatments as well.....but I have to admit it is such a tough decision that any advice you have or stories of people that you know that have been though such treaments is appreciated.
Lotes of love ♥
I went and picked up the Kangen Water the other day!!! It has a PH of 8.5 and I also got 11.5. Jason is supposed to drink 90 oz everyday and 2 small shot glass size drinks of the 11.5. The purpose of this is to bring his PH up as cancer cannot survive in an alkaline envirnoment. Plus the water is just better for all of us! http://kangendemo.com/
The water is in addition to diet, supplements and excercise. We usually go for a walk around the neighborhood every night.
Jason and I still remain hopeful that he will survive cancer!!! We are still researching conventional treatments as well.....but I have to admit it is such a tough decision that any advice you have or stories of people that you know that have been though such treaments is appreciated.
Lotes of love ♥
Friday, May 18, 2012
Big Day Out!
Physicians
Went to see the Physicians Assistant yesterday. It may be a couple of months before they can replace the skull cap. Jason is approved to travel which is good news in case we decide to go to a center out of state. Jason's incision looked good, no infection.
Jason is experiencing a lot of lower back pain due to sitting and laying so much after the surgery. Every day he gets up and moves around a little more. I also took him to the Chiropractor and will be taking him again today. They are not able to do the normal adjustment (due to the surgery) however our Chiropractor is amazing and has special machines and tools he uses on Jason.
He still has a positive attitude and continues to fight to beat this. I just have the best feeling in the world that he will!
Jason is experiencing a lot of lower back pain due to sitting and laying so much after the surgery. Every day he gets up and moves around a little more. I also took him to the Chiropractor and will be taking him again today. They are not able to do the normal adjustment (due to the surgery) however our Chiropractor is amazing and has special machines and tools he uses on Jason.
He still has a positive attitude and continues to fight to beat this. I just have the best feeling in the world that he will!
5/17/12
Called Cancer Center of America yesterday and really liked that they incorporate diet and nutrition into their program! I still have a lot of questions but one thing that I was told is that they offer a radiation treatment that Jason would only have to do one time!!! The Onocologist here told us here that Jason would have to go to radiation 5 days a week for 6 weeks. Take a month break then go back for 5 days each month. That is just too much! I am calling other places too so that we can make an informed decision =)
Tuesday, May 15, 2012
MY FIGHT MATTERS POEM (Jason Likes =)
In everyday life true fights materialize. No championships belts, no grand prize. Just a reason you rise and strive to overcome. It’s not about battles won, it’s what you stand for. It’s sacrificing your comfort and carrying on for a cause. It’s for self satisfaction and not the applause. It’s tarring down walls, it’s what you exercise you might for. We should all have something we fight for,and my fight matters. Does yours?
5/14/12
Jason went for a short walk yesterday and today. He tires very easily but the walk was about 10 minutes each time. Most of the day he is laying down but he is in pain from all the laying. Each day he continues to get better. His left hand and arm are doing amazing! He still struggles a little but he he has made huge progress in the last week. He has a follow up appointment this thursday with a surgeon. We still do not know when he will have his next surgery. It will all depend on when the swelling goes down. He is eating mainly a plant food based diet, on several supplements like Omega 3 and IP6 (look this one up regarding cancer) and has the most amazing attitude and strength. I am so proud of him. He continues to struggle with wearing his helmet. Even the kids are reminding him to put in on. That part is cute.
Sunday, May 13, 2012
When it rain's it pours
We got into an accident tonight.....I just dont understand???? WHY???? My mom, Makaylin and I had just went grocery shopping for some healthy food and Jason's perscriptions. We were stopped at a light about 5 minutes from our house when a lady slammed into the back of my car. We flung forward and slammed back into our seats. Today was our first day out of the hospital and there we were back in the ER again. Someone please tell me why? We are ok and back at home but my goodness. The lady that hit us turned around to tell her 2 young kids something. It happened so fast. She had to have been going at least 40mph. I am just guessing. My trunk is all smashed in, it doesnt even close. I just keep wondering when things will start looking up for us......I dont know how much more we can take.
Saturday, May 12, 2012
Philip Binzel, M.D., Alive and Well, Chapter 14
"When a patient is found to have a tumor, the only thing the doctor discusses with that patient is what he intends to do about the tumor. If a patient with a tumor is receiving radiation or chemotherapy, the only question that is asked is, "How is the tumor doing?" No one ever asks how the patient is doing. In my medical training, I remember well seeing patients who were getting radiation and/or chemotherapy. The tumor would get smaller and smaller, but the patient would be getting sicker and sicker. At autopsy we would hear, "Isn't that marvelous! The tumor is gone!" Yes, it was, but so was the patient. How many millions of times are we going to have to repeat these scenarios before we realize that we are treating the wrong thing?
In primary cancer, with only a few exceptions, the tumor is neither health-endangering nor life-threatening. I am going to repeat that statement. In primary cancer, with few exceptions, the tumor is neither health-endangering nor life-threatening. What is health-endangering and life-threatening is the spread of that disease through the rest of the body.
There is nothing in surgery that will prevent the spread of cancer. There is nothing in radiation that will prevent the spread of the disease. There is nothing in chemotherapy that will prevent the spread of the disease. How do we know? Just look at the statistics! There is a statistic known as "survival time." Survival time is defined as that interval of time between when the diagnosis of cancer is first made in a given patient and when that patient dies from his disease.
In the past fifty years, tremendous progress has been made in the early diagnosis of cancer. In that period of time, tremendous progress had been made in the surgical ability to remove tumors. Tremendous progress has been made in the use of radiation and chemotherapy in their ability to shrink or destroy tumors. But, the survival time of the cancer patient today is no greater than it was fifty years ago. What does this mean? It obviously means that we are treating the wrong thing!"
In primary cancer, with only a few exceptions, the tumor is neither health-endangering nor life-threatening. I am going to repeat that statement. In primary cancer, with few exceptions, the tumor is neither health-endangering nor life-threatening. What is health-endangering and life-threatening is the spread of that disease through the rest of the body.
There is nothing in surgery that will prevent the spread of cancer. There is nothing in radiation that will prevent the spread of the disease. There is nothing in chemotherapy that will prevent the spread of the disease. How do we know? Just look at the statistics! There is a statistic known as "survival time." Survival time is defined as that interval of time between when the diagnosis of cancer is first made in a given patient and when that patient dies from his disease.
In the past fifty years, tremendous progress has been made in the early diagnosis of cancer. In that period of time, tremendous progress had been made in the surgical ability to remove tumors. Tremendous progress has been made in the use of radiation and chemotherapy in their ability to shrink or destroy tumors. But, the survival time of the cancer patient today is no greater than it was fifty years ago. What does this mean? It obviously means that we are treating the wrong thing!"
5/11/12
Tonight Jason and I walked around the hospital and I showed him the first ICU he was in, the elevator the EMT took him in to get there, the phone we used to call to get in, the waiting room where all of you waited. I showed him the red elevators we took to get to the 3rd floor, and the window that I sat and stared out of. He said he was really happy that I showed him because he does not remember anything about that unit. We were not able to actually go into the room but we peaked through the double doors and I pointed out room # 2 where he was for the first few days.
I took down all the cards, pictures and letters that were posted on the wall. I cant wait to get in our car tomorrow to head home. I will need to make several trips to get all of our stuff to the car. Jason said thank you for all of the gifts and cards!!!!
We have had a bunch of wonderful nurses (some not so much) but I believe we have over stayed our welcome! I am grateful for all the people here that have helped take care of Jason.
His journey to recovery is not over. Please continue to pray for him to come out of this stronger than ever.
MANY wonderful friends and family have come to visit us during the last 2 weeks and I can not say enough how much we appreciate seeing you. It is so heart warming to be loved by you all. We could not ask for better people to have in our lives. THANK YOU SO MUCH FOR LOVING US AND CARING ABOUT OUR SITUATION.
We could not have gotten this far with out ALL of you!!!
HERE ARE SOME WONDERFUL ACTS OF KINDNESS FROM YOU ALL!!!!
If I did not mention you, please know that we appreciate each and everyone of you.....we tried our best to remember everything.
*My mom and Todd for watching Lyric and Makaylin for the last two weeks as well as taking care of Lucky and our house
*Erin & Greg, Rhonda & Kevin for helping my mom with the kids
*Our kids for being so good for Grandma and Grandpa
*Bonnie & Jerry for taking Jason to the hospital
*Jesse for helping me with my house and kids when Jason was not feeling well
*Angel for trying to help Jason when he was in pain
*Everyone who was here the first night Jason was admitted and allowing me to cry on your shoulder
*My mom for his knowledge about nutrition and supplements
*Tasha, Tamara L, Don & Katrina, Erin E, Dan & Sabrina, G-Ma, Debbie & Tamara C., Danielle, Gary & Carla, Bonnie & Jerry and Suzanne for bringing us healthy food so that we didnt have to choke down the hospital food!! (sorry if I forgot anyone!)
*Aub for staying at the hospital the first 2 nights watching over his baby brother and keeping me company
*Rhonda for staying at the hospital with me until 3 am to make sure I had someone to talk to and comfort me while I was waiting for Jason's 2nd surgery to be over.
*Tasha for making sure our kiddos still made it to Brennan's b-day party
*Adam for mowing our lawn, you are the best neighbor ever
*Friends who brought Jason a coke when he desperately wanted one
*Sara for the apple pie
*Adam and April for bringing up the Emu Oil
*Co-Workers at both are jobs who sent us flowers
*Everyone who sent us cards
*Debbie and Tamara for the flowers
*Everyone for the prayers
*Everyone who came to visit
*Everyone who posted a message to brighten our spirits
*Family who has offered to have us stay at their house while Jason is going through treatment
*EVERYONE who has donated to the Jason Wilson Benefit Donation Account
*Suzanne for ordering the bracelets and setting up the meal website
*DeAnna and Tamara for setting up the donation account
*DeAnna for setting up fightingforjason.org and the we love jason group page on FB
*Jerry and Bonnie for helping with a donation golf tournament and account
*Gary and Carla for setting up a dinner donation night
*Erin and Danielle for the laptop
*Jason's co-workers for passing around a donation box
*Everyone who has made us laugh and smile even during this incredibly difficult time
*Royce and Jerry for buying me food at the hospital
*Don & Katrina, Ryan, Dustin & Karissa, Steve & Heidi, Geoff & Crystal for bringing Jason DVD's, magazines, pictures, food & candy
Friday, May 11, 2012
We are so excited to be going home soon!
We are so excited to be going home soon! Jason has improved everyday! We want you all to know that Jason would love to have visitors at home but we want to also have time to get settled back in to being at home and spending time with the kids. I think the easiest thing to do is to continue to call me or text me if you want to visit and we will let you know what time works best! We are so grateful for ALL of you! Lots of love!
Thursday, May 10, 2012
5/9/12
Today Jason got to walk around the hospital for quite some time! He did very well. He also got to play the bowling game on the WII - that is some fun PT!!! He also played Yahtzee and won =)
I am counting the days until he comes home.....I know things will not be easy but I am confident that we can get through it. I am positive that the hardest challenge will be his helmet.
I continue to research to find the best treatment for Jason. The radiologist recommends that he starts radiation next week.....I am sure we will wait some time before we consider that.
For now we are just starting the Budwig Protocol which is eating particular food and taking certain supplements.
We appreciate all of the visitors that have come to the hospital. I want to make sure that you all know that Jason will also need his family and friends to visit when he returns home. He is a social guy and needs to be around people.
Love you all!
I am counting the days until he comes home.....I know things will not be easy but I am confident that we can get through it. I am positive that the hardest challenge will be his helmet.
I continue to research to find the best treatment for Jason. The radiologist recommends that he starts radiation next week.....I am sure we will wait some time before we consider that.
For now we are just starting the Budwig Protocol which is eating particular food and taking certain supplements.
We appreciate all of the visitors that have come to the hospital. I want to make sure that you all know that Jason will also need his family and friends to visit when he returns home. He is a social guy and needs to be around people.
Love you all!
Tuesday, May 8, 2012
5/8/12
5/8/12 - Jason still continues to improve but has some difficulties with thinking skills. They continue to work with him and I am hopeful that he will gain all of that back
I confirmed once again with the surgeon that he was only able to remove one third of the tumor and that it was not be in Jason's best interest to try and remove anything further.
I have gotten into it with a couple of the nurses since being in the rehab center. I think I made it perfectly clear how I felt about some things.
Today we find out when Jason "may" get released from prison - I mean the hospital. They will not be able to put his skull back prior to going home. I am nervous about how we will do at home but hopeful that he and I will work together for his safety.
I was thinking it might lighten his mood about having to wear his helmet at home if visitors showed up wearing one! Let me know what you think =) Just an idea - but he really hates wearing it and I thought it might make him feel more comfortable. Of course you wouldnt have to wear one if you dont want nor keep it on the whole time.
Radiologist (?) came in this morning and talked to us about this treatment. I still am so confused and dont know what to do. I dont want to delay any treatment but geez - I dont want to put Jason through anything that is going to make his life harder.
If you know of any good questions I can ask please send them to me. I have notebook now and I am trying to be more organized so I can get some answers for Jason.
Love you all.
I confirmed once again with the surgeon that he was only able to remove one third of the tumor and that it was not be in Jason's best interest to try and remove anything further.
I have gotten into it with a couple of the nurses since being in the rehab center. I think I made it perfectly clear how I felt about some things.
Today we find out when Jason "may" get released from prison - I mean the hospital. They will not be able to put his skull back prior to going home. I am nervous about how we will do at home but hopeful that he and I will work together for his safety.
I was thinking it might lighten his mood about having to wear his helmet at home if visitors showed up wearing one! Let me know what you think =) Just an idea - but he really hates wearing it and I thought it might make him feel more comfortable. Of course you wouldnt have to wear one if you dont want nor keep it on the whole time.
Radiologist (?) came in this morning and talked to us about this treatment. I still am so confused and dont know what to do. I dont want to delay any treatment but geez - I dont want to put Jason through anything that is going to make his life harder.
If you know of any good questions I can ask please send them to me. I have notebook now and I am trying to be more organized so I can get some answers for Jason.
Love you all.
Monday, May 7, 2012
Take Them a Meal!
I have created this link for anyone that lives in the Portland metro area that would like to help bring meals to Jason and Nicole and family.. This will make it easier with a schedule so people arent doubling or even tripling up on a single day and keep down any food waste to! :) Just go on and pick a day! :) thanks so much!
www.takethemameal.com
Click on the link above to view the meal schedule for Jason, Nicole and family Wilson on TakeThemAMeal.com.
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