Jason had an MRI yesterday and an appointment today with the radiation oncologist. His tumor is about 1cm. I am unsure what the size was right after his last sugery. I am hoping to find that out so we know if it has grown at all. He starts radiation next Tuesday. The radiation is Rapid Arc. I went in with him for his MRI and I have to say that machine is the loudest thing ever, and they make him lay perfectly still for a really long time. I can't believe he has had to go through that multiple times. Apparently it wasn't the smartest thing for me to do but since they let me I wanted to be there for him.
His helmet it really bothering him where is incision is. I feel so bad for him because I know how much it must be hurting him. It is right where his skull was cut and it rubs on it. I am going to see what I can find out about getting him a new helmet or something to alleviate his discomfort.
I found out yesterday that my work will not allow me to work from home as I had hoped they would. I completely broke down......I really was hoping that this would an option for me because I am really worried about leaving Jason home by himself due to the possiblity of him having a seizure. What if that happens and no one is here.....I wish I didnt have to work and I could just focus on taking care of him. The reason they said I couldn't work from home was because I would be too much like a care giver. I think that is completely unfair. I had a letter from a doctor recommending I work from home and it specifically stated that I would not be a caregiver and that he was capable for caring for himself. In the coming weeks Jason will grow stronger and will not need my help as much but I do not feel like it is the best idea for him to be here alone. It is not like he broke his leg. I am supposed to return to work next month. Praying by then that there are big miracles that happen.
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