‎7/29/12

It has been 3 months since Jason was diagnosed. Time seems to have gone by fast and slow at the same time, if that makes any sense at all. The radiation has been very hard on Jason and he has decided that he does not want to continue treatments any longer. When we went to the doctor the other day, he asked us if Jason had been hit or if anything had happened to him because there was a small amount of blood in his ear. The blood was dry. Nothing (thankfully) has happened to him. Could this be from the radiation? I don't know, but it certainly couldn't have been from anything else that I can think of.

We have been faced with so many tough decisions and this one is not any easier. Although, we do know that the best decision is what Jason feels is the right thing to do. Only he knows exactly how he is feeling and has learned through this experience to listen to what his body is telling him.

We said a prayer yesterday for God to help us make a decision and for all of the alternative treatments we are doing to help him.

This is a picture of Jason with his mask on for radiation. I wasn't even sure that I should post this picture but I want our friends and family to really have a good understanding of what he has been going through. This has been really hard on him both mentally and physically. He said he didn't think that radiation was going to be as hard as it has been on him.

Jason is so important to me....It is hard for me to watch him go through this. I wish I could do more.....I wish I knew more answers. I love him so much ♥

7/27/12

We are still working on scheduling his next surgery. Looking forward to having it behind us. Jason is doing good. Still really tired and sleeps most of the day. 11 treatments to go. Went to the doctors today for a follow up. I got another paper copy of his MRI. It is all so very confusing. I have requested the the MRI images be sent by FedEx to Dr Baird for review. He should have them on Tuesday. 

If you can please take the time to help out with one of these fundraisers. Our family and friends have spent a lot of time and effort putting these together and we could really use the help! The money raised will continue to go to Jason to pay for his alternative treatments not covered by our insurance. We also have a ton of medical bills but our first concern is getting Jason better.

***VOLUNTEERS NEEDED @ Centenial High School in Gresham - JULY 28th and 29th LINK THE PINK/RELAY FOR LIFE EVENT***
There will be a booth during this entire event Saturday at 10 am through Sunday July 29th 10pm. I am hoping that others will be able to come down and man the booth for Jason. The longer we have someone there the more links we will sell which means more donations for Jason's cause!
We will be selling gray links starting at $1.00 each. If you would like to volunteer your time then please contact Katrina Mascher (360) 241-0635 or krmascher@gmail.com.

***ORDER BY JULY 30th - PARTYLITE***
Through this Saturday only. 50% of your purchase will be donated to Jason! Go to http://www.partylite.biz/sites/camsflameslit/fundraisers-products to view the 3 products and 10 fragrances available for this fundraiser, then call Dena with your order 503-654-4924 it is that easy! Checks or cash only. Online ordering is not available for fundraiser.

***ORDER BY JULY 31st - DECALS & MONKEY FISTS ***
You can purchase a $5 decal that says "My Friend Battles Brain Cancer" Or it can say "My neighbor" or "My nephew" or "My Cousin" or whatever you want it to say. You can also purchase a brain cancer awareness ribbon decal for $2.50. A portion of all Proceeds will go to Jason Wilsons Benefit Fund. To place your order call Casey Sallee 503-396-6927 or email caseysallee@boatcscg.com. You can also order a monkey fist keychain. 

‎7/26/12

Jason has completed 21 of 33 radiation treatments. He is so tired and has lost some hair but is still as handsome as ever! I return to work next Tuesday...*tear* I also am in the process of scheduling his next surgery in Tulsa.

I wanted to explain the reason for all the sites. I am not sure if any of you have been wondering but in case you have here is an explaination =) 

The We Love Jason Facebook page is a great way to share Jason's story with friends and family however some of our friends and family are not on FB so we also have the Caring Bridge We Love Jason page as well. 

In addition, there is the www.fightingforjason.org page...this is the site that we share with everyone and is the site that is printed on the wristbands. This is the easiest way for those not on FB or caring bridge already to see the updates. We have met a lot of people through out this process and have shared that website with them. It also is a way for people to donate and we appreciate everyone that has donated to helping Jason fight cancer!

I recently have been searching FB looking for glioblastoma survivors and came across a few pages that were very helpful to me. So that made me think that there must be others that are searching for the same thing I am! So I created another page called Glioblastoma Fighter on FB which will allow people who are searching for answers as I am to find our page and ask us questions as I am doing on other people's pages. We are really hoping that we can connect with other people sharing the same experiences and be able to help them as well!

I update the same thing on all of these pages so you do not need to go to ALL of them as they all have the same information...the only thing that you may be interested in is seeing other people's responses like on the new Glioblastoma Fighter page.

7/22

These were pictures taken in Tulsa right after Jason's last surgery. I hadn't posted them before and wanted you all to see how great Jason's surgeon was with him.

One day after surgery in Tulsa at CTCA

This is Dr Baird the most wonderful surgeon ever! He is a great person who cares about his patients and it really shows!

Jason's surgeon, Dr. Baird, came and took off Jason's bandage
and got him up for his first walk after surgery!

This is Jason's bed at CTCA. It is an air bed that adjusts positions. We were so happy that they had this bed there because the other beds really hurt his back. This one was great!

7/20/12 - MRI UPDATE

We were able to view the MRI today with one of the resident radiologists and I also reviewed the report that was written (I am not sure who writes it though). It was a paper document. There was a lot of stuff I didn't understand but basically it was saying that there was possibly some residual tumor but that it was very very small. I also recieved a call from Jason's PCP tonight. He left a message regarding the final results of the MRI. He basically said the same thing in his message as the resident doctor said, so I suppose that at least it is good that we are getting the same information. It sounds like sometimes it is hard to tell 100% that something is or is not a tumor when it is really small like it is. Here is the great news.....no matter what is still there it has not grown!!!! That is amazing news!!! We will continue to figt hard to get rid of it!!!

There are several fundraisers that our amazing friends have going on right now for us! Please now how much we appreciate all of you and all that you have done for us! Here is a recap of what is going on:

DECALS & MONKEY FISTS - Through July 31 you can purchase a decal like the one pictured below. You can also order a monkey fist keychain. Casey Sallee will be donating a portion of all Proceeds to Jason Wilsons Benefit Fund. To place your order call 503-396-6927 or email caseysallee@boatcscg.com.

24 HOUR FITNESS & LINK THE PINK - Event is this Monday July 23 from 2-7pm at 800 S.E. Tech Center Drive, Vancouver, Washington 98684. Links can be purchased and funds will benefit Jason! It sounds like there will be other things going on to help other poeple battling cancer!

PARTYLITE - 50% of your purchase will be donated to Jason! Go tohttp://www.partylite.biz/sites/camsflameslit/fundraisers-products to view the 3 products and 10 fragrances available for this fundraiser, then call Dena with your order 503-654-4924 it is that easy! Fundraiser runs through July 30th. Checks or cash only. Online ordering is not available for fundraiser.

QUILT - For every $10 donated at www.fightingforjason.org you will be entered to win an amazing quilt made by Jason's aunt! A picture of the quilt is available at the above website. Drawing will be held in August!

Thank you to everyone who is helped us! We are so grateful for you all!

‎7/19/12

Jason just had his MRI at 5 tonight and I already recieved a call back from his doctor..................the radiologist said that his MRI looked really good and mentioned nothing about seeing a tumor!!!!!!!!!!!!!! I am trying to contain my excitement right now.....this is a preliminary report but still....that is amazing news!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! Thank you to Dr Tremaine for calling us so late to tell us the news and thank you to the wonderful lady at the diagnostics imaging desk who helped get the results to his doctor tonight (sorry I don't recall your name) but you are all so wonderful and we can't thank you enough!!!!!!!!!!!!!!

‎7/17/12

Jason will have an MRI this Thursday. Please keep him in your thoughts and prayers ♥ We are hoping and praying for amazing news that his tumor is smaller or evern better gone. His appointment is at 4:30. I am not sure how soon we will get the results back.

We want to say a very special thank you to our friend Tad and Hanger Inc for their amazing work in getting Jason a custom helmet that actually fits him and is comfortable!!! We are so blessed to have such wonderful people in our lives and can even begin to explain how much appreciate what this company has done for Jason! The helmet he had before was a piece of junk that hurt his head. His new helmet does not hurt him at all and still protects his head! If you know any one who is in need of prosthetics or orthotics I would definitely contact this company. Go to www.hanger.com for more information. Check out the picture of Jason with his new helmet! Jason said he likes that it fits his ears! Liz - no ear jokes - =)

The Link the Pink event is this next Monday! Please come out to this event and help not only Jason's fight to beat cancer but others as well!!! You can visit link the pink athttp://linkthepink.org/events

Here is the event information....

24 hour fitness is hosting an event on 23rd of July at the Tech center location off of Millplain (Vancouver, Wa)

Link the Pink will be there from 2-7pm

Ulta will be providing stylists to cut hair for “Hair for Me” that will be donating to Locks of Love. This is a high school project for two ladies who attend Heritage High.

We will be selling links for a family in need with two small children with a Dad who has brain cancer

Please come support the community at this event!

7/16/12

After a couple of rough days last week Jason is doing a lot better!!! We even went out to Rainier on Saturday to spend time with his family for his Uncle's 70th birthday and go with them to Rainier Days which is a fair and firework show! Jason had a great time spending time with his family and we were so happy that we were able to go. The firework show was amazing!! Check out the pictures that Suzanne posted of her and Jason on the We Love Jason page!! Thank you to all of Jason's family for having us over and making that a great day to remember!!

Jason has started to lose his hair from radiation and also he has extremely dry skin on the right side. He said that before he started radiation that if he started to lose his hair he was going to quit treatments. He is finding it hard to make that decision now that losing his hair has become a reality. It is hard to know whether the radiation is causing more harm than good or more good than harm. We struggle with knowing what the right thing to do is all the time. As of right now he has completed 12 treatments leaving 21 left. Not even half way and already seeing the negative side effects is very hard for him, and for me. We are hoping that he can get an MRI soon and maybe that will help him decide whether to continue or not. 

We have the most amazing people in our lives, I will not be able to tell you all enough time how grateful we are and how blessed we are to have you all in our lives! Thank you for your continued love and support! We would not have been able to get through the last 3 months without all of your help and donations to our family! Our only income has been Jason's disability which is enough to cover our first mortgage only. Your generosity is heartwarming and we love you all so much!

Here are some amazing things that our friends are currently doing for us to help raise money and awareness about our situation. Please help out if you can....we appreciate it very much!

BOWLING FUNDRAISER ORGANIZED BY Katrina Schalz Mascher - Here is her post "I am working on a couple of fundraisers to help out with the extra costs. Please put your heads together if you know of anyone who would like to donate gifts, gift cards, gift baskets etc. I need these items for a bowling fundraiser that is scheduled for September 29th and any contributions would be greatly appreciated. Please call me, text me, facebook me if you can help! I really could use the help so I can make this an amazing fundraiser event. Watch for more details on the bowling extravaganza event! I will post the details and have flyers available shortly if anyone wants any."
Please email her at krmascher@gmail.com or FB message her at katrina.mascher@facebook.com 

PARTYLITE FUNDRASIER ORGANIZED BY DENA THORBURN - 50% of your purchase will be donated to Jason! Go tohttp://www.partylite.biz/sites/camsflameslit/fundraisers-products to view the 3 products and 10 fragrances available for this fundraiser, then call Dena with your order 503-654-4924 it is that easy! Fundraiser runs through July 30th. Checks or cash only. Online ordering is not available for fundraiser.

Thank you!!!

7/12/12

Last night was very hard.....Jason had a fever of 101, the chills, increased weakness and headaches. It was just me and Makaylin here and I was being faced with the decision to take him to the ER. In May, before his last surgery, these were some of the symptoms he was experiencing. It scared me so much I was crying to my brother on the phone. I asked Jason what he wanted me to do....he just said "what are they going to do at the ER" my response "I don't know" Really all they can do at this point is another MRI. 

Radiation can cause inflammation and swelling so getting an MRI right now may not give us an accurate picture of what his tumor is doing. In fact, radiation can cause the tumor to get mad (for lack of a better word) and things can actually get worse before getting better.....**tears**

I decided to do the only things I could....cold washcloth on his forehead and 2 fever reducer Tylenol. Over the next couple hours I changed and changed that washcloth. His fever did eventually go down, the chills went away (in fact he started to get really hot). Makaylin and I slept on the couch with Jason. This is the only place Jason is comfortable sleeping because he is not comfortable laying down, he sits up on the couch and sleeps.

Today he continues to be extremely tired. He chose not to go to his radiation appointment today. I called all of his current doctors, his PCP, his Radiation Oncologist and his surgeon in Tulsa Oklahoma (on his cell phone by the way). They all agreed that we should take him to the ER if things continued the way they were. At this time he seems to be improving. I am still scared as heck.

I want nothing more than Jason to get better….why does it have to be so damn hard? Hasn’t he been through enough? Doesn’t God know how badly we all still need him here on Earth? Please tell me that He is listening to all of our prayers….

Portland Tribune!

I am amazed by what wonderful family and friends we have! Our friend Stancia had this published in the Clackamas Review regarding Jason's fight to beat cancer. Thank you with everything we have for your support and help Stancia xoxoxo

http://portlandtribune.com/cr/24-news/111956-family-takes-aim-at-deadly-brain-cancer

http://portlandtribune.com/cr/24-news/111956-family-takes-aim-at-deadly-brain-cancer

portlandtribune.com

He has completed 10 treatments.....23 more left.

Jason was very tired today....more than usual. I am guessing it is from the radiation. He has completed 10 treatments.....23 more left. Feels like forever.

He will not get his skull flap replaced until 4-6 weeks after the radiation. We will travel back to Tulsa to see Dr. Baird for that surgery. Tulsa is not my favorite place but Dr. Baird is my favorite surgeon and saved Jason's life so there is no way we will go anywhere else.

He gets his new helmet on Friday! Really praying this one works out because the current one hurts his head and he never wears it any more which is really scary. Thank you Tad for helping us with the new helmet!

Thank you Suzy and Stancia for putting up the meal website again! We will never turn down food =) Things are so crazy here it is hard for me to keep up with it all....so food is a blessing on a crazy busy day. Jason used to have dinner made by the time I got home from work....he spoiled me and he is a great cook....I sure miss those days. He did make me breakfast this morning which I thought was so sweet. It is so great to see him doing things he used to.

If you want to sign up here is the site....WE CAN'T THANK YOU ALL ENOUGH FOR ALL YOUR ARE DOING FOR US!!! LOTS OF LOVE AND HUGS!

http://www.takethemameal.com/meals.php?t=KGLI2404

Meals For . . . Jason, Nicole and family Wilson

www.takethemameal.com

Click on the link above to view the meal schedule for Jason, Nicole and family Wilson on TakeThemAMeal.com.

The garage sale was a huge success!

Wow!!! I feel like I haven't posted anything on here in a long time!!! We have been really busy.....

Jason has finished 7 radiation treatments. Still no major side effects which is great! I think it is the brown seaweed vitamin that he is taking. We found out that he will not get another MRI until 4-6 weeks after he completes his radiation......kind of scary since we do not know what the tumor is doing. I am praying the darn thing will be gone by then!!! His radiation onocologist recommends that he waits 6 weeks after radiation before having his skull flap replaced....we will of course be checking with Dr Baird since he will be doing the surgery.

The problem is....we think that the skin laying directly on his brain may be causing him alot of the problems he is having with his hand. Sucks to have to wait so long when this is bothering him so much. He has a hard time sleeping because when he lays down it hurts him. I am so frustrated for him! Just can't get a break.....

The garage sale was a huge success! Thank you to everyone who helped run the sale, let us borrow quickshades and tables and donated to our sale! It was not an easy task running it for 3 days but we did it and it was worth all the effort! Thank you so much for all your love and support!